The Recruit

Places all over Houston want Trevor Falk and pitch the wonders of community life. He is 24 and has Down syndrome, which makes him a hot commodity for private group homes.

In a closet in his dorm room at Richmond State School, Trevor Falk keeps his one nice suit.

Trevor Falk, a 24-year-old with Down syndrome, was kicked out of 13 group homes before moving to Richmond State School.
Paul Knight
Trevor Falk, a 24-year-old with Down syndrome, was kicked out of 13 group homes before moving to Richmond State School.
His mother, Linda Falk, feels safe with him there.
Paul Knight
His mother, Linda Falk, feels safe with him there.

The 24-year-old with Down syndrome wears it on Sundays when he attends church services, and he usually makes the five-minute walk to the school's chapel with the two roommates he calls friends.

During weekdays, Trevor is often alone, free to walk the 240-acre campus delivering mail to other residents. He also works in the administration building answering phones, and with paychecks from the two jobs, he's saved a little more than $1,500, according to his mother, Linda Falk.

It's a big leap for Trevor, who was sometimes restrained with a straitjacket when he first came to the school two and a half years ago.

One afternoon in May, Trevor left his dorm room planning to pick up mail for other residents, but saw his mother outside. She was visiting that day, but Trevor hadn't known when she was coming. The two saw each other and embraced.

"What do you want to do today Trev?" Linda Falk asked.

Without missing a beat, he said, "Go to a group home."

Trevor's answer surprised his mother, but then again, maybe it shouldn't have. Several times a year, a horde of representatives from the hundreds of privately owned group homes in Harris and Fort Bend counties visit the state school to promote their private facilities. Patients at Richmond often wear T-shirts and carry tote bags displaying names of group homes, picked up with other free swag at the promo fairs.

The effort pays off. The population of disabled residents in group homes in Texas has grown to about 14,000, and the industry generates about $896 million in revenue from state funds alone, according to the state's figures from 2008.

Private providers are paid about $4,700 per month per client, so for a place like Four J's Community Living Centers, which serves about 80 clients near Sharpstown Mall, that's $366,600 per month. Most providers also own residential homes, and to pay for room and board, clients sign over their Social Security checks.

As the private system has grown, the knock against Richmond and the state's other 12 mental facilities has become easier to make.

In 2005, the United States Department of Justice visited Lubbock State School and during the 18 months that followed, even with federal investigators in and out of the school, 17 patients died while employees attempted to cover up some of the deaths.

A couple of years later, the Justice Department investigated Denton State School, involved in its own scandal after Kevin Miller, a state school employee, admitted to almost beating to death a mentally retarded man. Later, Miller told investigators about rampant neglect and drug use by the school's staff.

And in March of this year, a cell phone was found at the Corpus Christi state school containing video of disabled residents in fights — nationally publicized as "fight club" fights — apparently set up by school employees. In the worst cases, the employees kicked and slapped already-injured patients.

More abuse at Corpus Christi has come out since the videos were released. According to The Dallas Morning News, school records show a worker falling asleep while driving patients, causing the van to roll over; an employee whipping a patient in the face with a belt; a staff member restraining a patient by flipping over his wheelchair; and an employee using a walking cane to beat a patient.

In May, a 15-year-old girl hung herself with her shoelaces at San Angelo State School, and according to an article in the San Antonio Express-News, the girl's mother had previously received more than a dozen letters in one year from the Department of Aging and Disability Services about complaints her daughter made alleging abuse from the school's staff. Only one case of neglect was confirmed and an employee was fired.

Richmond State School has not been without incidents itself.

State documents show at least one confirmed case of neglect during 2008. It happened after a staff member was watching TV instead of his patient, who fell down getting out of bed. Despite finding him with blood running from his nose, the employee did nothing. A checkup the following morning revealed the patient had fractured his face in three places.

Almost all other reports were marked "unsubstantiated," ranging from allegations that employees dispensed the wrong medications, to urine and fecal matter on furniture, to clients having sex in front of buildings.

Those complaints, according to investigators, didn't warrant citations.

A Justice Department report released in December 2008 cited 36 deficiencies at Richmond, including "failure to ensure clients' rights were protected, including the right to be free from abuse, neglect and mistreatment" and "failure to show that all allegations of abuse, neglect, or mistreatment were thoroughly investigated."

There were cases of neglect at every state school in Texas, according to the report, and before the state legislature kicked off its session this spring, Governor Rick Perry declared protection of state school residents a "legislative emergency."

At the same time, equal attention wasn't being paid to the private community-based homes in Texas. And actually these homes operate under far less stringent state regulations than state institutions do.

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  • Faridamalik1 04/22/2011 9:35:00 PM

    Hello, My name is mrs. Farida Malik and i along with my family hail from karachi pakistan I have recently moved to NY-USA permanently and reside in astoria queens i am now a home maker however i was an acting principal for deva academy for the deaf and also receieved teachings from the lexigton school for deaf here in NY back in the 70's i have been involved in social work most of my adult life. I am writing for my son taimour ahmed noor. he is now 24 years old and is down syndrome. Back in pakistan, i had very limited resources to tap for my son however i tried everything to normalize him and make him more sociablly acceptable he was in a special school (IBS - institution for behavioral studies) he was part of special olympics he was attending creative camps (catering to such individuals) however, since we had to move here, i am very worried as we have no knowledge as to where and how should he be able to utilize his time and make the most of it he is an american citizen, enjoys indian music, draws and sings i would really appreciate (humbly) that if some one can assist and guide us to what oppurtunities are out there for him. please i look forward to hearing from someone, my number is: 7187770895 you can call or email me anytime for this. i myself would like to assist as much as i can thankyou so much awaiting your reply a worried mother mrs. malik

  • Marie P Johnson 06/24/2009 1:04:00 AM

    Thank you for this article. My 19yr old son is a very high functioning adult with Down Syndrome. As a native Texan, I am appalled by the lack of support for, and abuse of, mentally disabled children and adults in our state. It is truly heart breaking to see this wonderful young man who society does not want and has no intention of providing a mechanism to integrate him into a "normal" life. All I have to say is this: birth defects are very common. The persons in positions of authority to change this sorry system and who have totally failed, may very well find themselves in the same situation: With a dearly loved family member who has NO opportunity to integrate safely and fully into society. No way to use their talents to give back to society, to have a real job, to pay taxes, to be a REAL participating member of society. We live in a callous society with no intention of helping those, who through no fault of their own, need assistance in daily living. 47,000 people on the wait list for medicare vouchers? $4,700 per month for a private facility? Where the risk of abuse is even greater w/o government oversight. Is this America? The land of free and home of the brave? Our disabled sons and daughters are NOT free and I don't see any people brave enough to step up to the plate, to do the hard work of establishing a humane system for disabled people. No doubt with the significant rise in autism, many more families will face the same ugly truth. One final comment, what happens to these children and adults when their family gets old and dies??? My advice after 19yrs - do not expect anyone to care or to help. Afterall, we deceive ourselves when claiming to be a civilized society. Marie, Travis' mom

  • Michelle 06/11/2009 10:19:00 PM

    Regarding provider fairs - Harris County MHMR has a virtual web based one on their website that allows providers to upload information, etc. DADS may want to look at that and use it as a model for provider fairs and place it on their website. That would remove to potential of some providers gaining access to HCS waiver lists "which is illegal" and secretly marketing to the ones that will be getting their slots shortly. I know it happens and it is a money maker in a variety of arenas. Ethics was last years theme at the DADS waiver provider training and it was just so appropriate.

  • Michelle 06/11/2009 10:02:00 PM

    Just to set things straight. Those private providers are attending provider fair which are part of the Community Living Options Program mandated by the federal government as well as the state government. As for Trevor he appears to be pretty stable and product and it may be time for him to move back in the community as the SS has stabilized his mental health issues. For most SS are not ment to be life long anymore as in the past. I do know of a few people who have been admitted to SS and will probably be there a very long time due to the pervasiveness of their disabilities primarily mental health. As for the Funding issue State schools get almost three times the about of money private/public providers do because it is actually based on a level of need score and chances over the source of time usually decreasing the amount of money a proivder receives. State School residents cost are not based on anything other than they are one commodity. You may what to rethink that funding system as see how State schools function with significantly less money due to "Level Of Need". Also State Schools keep their residents SSI/SSDI as well except for the mandated $60.00 per month that is required for personal needs. The other amount is for "room & board" and federally mandated for group homes, nursing homes, etc. Get your facts right before you report only one side of the story. Where did you get your journalism degree. I was taught to be unbiased when I took a class in journalism and we had to verify our information with citations, etc.

  • Lizzy 06/11/2009 3:14:00 PM

    I know Trevor and his mother Linda. I was in the same grade and good friends with one of his younger sisters back in elementary school. Trevor was a hand full for Linda back in the day but I'm so glad to know that everything is working out for him. His sister was in a horrific car accident a few weeks ago so please keep her and this family in your thoughts and/or prayers.

  • Jeanne Cecil 06/11/2009 8:05:00 AM

    My daughter, Kate, has 4 other friends who were in State "Schools" but managed to get out. They first were placed in group homes, then went to apartments with roommates before graduating to having their own apartments. Well, except for the two who got married and have their own home. The only roommates for the other friends are their cats. All these friends live in the community, pay their own bills, buy their own groceries and clothing, go out to eat, go to movies and anywhere else they want to. Why, they can even go walking in their neighborhood and visit with neighbors. They participate in swimming, basketball, track and bowling--in a league and in Special Olympics. They go to the Church of their choice where they have made friends and are treated like the rest of the parishioners. One sings in the choir.We are very fortunate that there is public transportation(MITS)that they can call for rides to reading, money, computer and exercise classes. These Community services have helped to teach the necessary skills for them to be so independent. They are also volunteers and very are very active advocates for everyone to have the choice to live where they want as long a they are safe. This report says the State "schools" cost $125,000.00 per year per client. The legislature has voted to pour even more money into a broken system. At the same time there are 18,000 people on waiting lists for community services. One thing that advocates for community living requested is to have the money follow the client from the State "schools" into the community. Just think how many clients would grow and blossom the same as Kate's friends have. Remember, they are former State "school" clients.

  • Jeanne Cecil 06/11/2009 3:35:00 AM

    Where to start. First, Advocacy Inc, Arc Texas, Community Now! and many other advocacy groups called on the legislature to omit the word "Retarded". It is a very hurtful word. There are many other ways to get the point across. Intellectually delayed or handicapped are two examples. Also, the place that was closed for the mentally ILL...we are talking (in your lingo)about mentally retarded people. Yes, some people have both problems. They used to be called MR/ED. ED stands for emotionally disturbed. I have a friend whose son was a level 9 in the institution. He is now in a group home that he loves and is now a level 5. Yes, he goes into the community. He rides in Denton at the facility there. He has a schlorship there. He is not able to work, but he loves to go eat, to the movies and go to 6 Flags. He has gone to the Capitol to testify there. He is a big part of our community. He had been in the Denton State "School" where he suffered great neglect from the staff. Now he is with his friends in a group home that he is proud of.

 

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